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Tuesday, January 26, 2010

One year ago today Jared and I received the horrible, awful news that Tyson had Mylomeningocele Spina Bifida and Charii I Brain Malformation. Unfortuntaley I will never forget the day and the series of events that took place. I remember calling my mom sobbing in the hall by the chapel on the 2nd floor at U of U. I remember asking why heavenly father? I remember feeling that life could not get any worse and that my world was completely upside down. It was the start of a new year and start of much growth for me. It was a definitely a roller coaster. Many ups and many down. It was the year I learned the most about family, love, charity and faith. This whole month I have spent sleepless hour thinking of my sweet Tyson. Where would I be without him. I know I definitely would not be the person I am today. He has brought so much love and joy into our home. What an amazing thing that the lord chose us to care for Tyson He put all his faith in us. He has opened us up to a whole new world. He has striked this passion in me for children, moms and families with children with spina bifida and other special needs. He has made me want to reach out to the world and spread awareness about spina bifida. For a long time I have wanted to share Tyson’s story. I felt that he needed his own blog after seeing several other spina bifida babies blogs and stories. It is tysonjared.blogspot.com. It is his story I really could write novel about everything that took place put this is it in a nutshell. I also could write novel about San Francisco. Ohh my! I am so excited to go back in June. I honestly think about it every day. Today is a good day I am not in complete darkness like a felt one year ago. I am enjoying this beautiful journey we call life. If the want more info. Read back to the January 26, 2009 post.

7 comments:

Jaci said...

You are so courageous! I know angels are always watching out for you and your family Jess. You are so admirable. Thanks for you example.
I'm so excited to get together!

Leesee Girlyfield said...

He really is a special little boy! He will receive so many blessings in this lifetime that most people will never understand. I am excited to read his blog! Love you guys!!!

Joanna and David said...

Hi Jessica! This is Joanna - Jet's mom :) You wrote on my blog (I'm so glad you found us!) and I just read Tyson's - so amazing - these miracle babies are such gifts! It's crazy how close our boys are in age and in situation! I wrote on Tyson's Story blog as well so you'll see me there too. :) I see that you have an email so we'll have to swap stories and questions! Your kids are adorable - Chloe is gorgeous!! What a beautiful family. :) So glad to know you!

Laurita said...

Hi Jessica!! I'm thrilled that I found this blog (using Google Alerts).

My name is Laura, I have spina bifida, and I'm 23, a senior in college.

I'm keeping a daily blog with the focus of raising public awareness of spina bifida and its secondary effects, as well as urging celebrities and public figures to adopt spina bifida as their platform. It's titled "Holdin' Out for a Hero," and I hope to keep it for at least ONE YEAR!

You have two adorable children!! God Bless you all, and I hope you'll take a moment or two to check out my blog, and share it with others:

http://willyoubemyhero.wordpress.com/

Blessings,

Laura :-)

Sarah Hull said...

Hi Jessica,
I too am glad you found my blog! Your family is beautiful! Let's for sure keep in touch. I agree (with the comment you left on my blog), i think a day at Disneyland with SB mom's and children would be awesome!! p.s. everyone could stay at my house since I live 20 minutes from there. and another P.S. Disneyland is AWESOME with kids with "extras" they always go wayyy out of their way to show Katie extra attention!

One of my good friends was in the MOMS study too. Her daughter is about the same age as mine (6). She runs around like champ and is doing awesome!

Anyway, I am so glad you found me and I look forward to keeping in touch. Please feel free to email me anytime with any questions or comments or if you just need to vent. It's so great to have a group of mom's that understand exactly what you are going through.

Take Care!

Krystal said...

It is so good to hear your thoughts and feelings and to know that you are doing so good! I love that he has his own blog that is so important I think! Your family picture is so cute and so is Tyson in those glasses!

Erin said...

Just checking up on "Scarsborough Way" and read Tyson's story on his blog. It is so amazing and I thank you for sharing it. It really touched my heart and I will always remember it.