This week has been so exciting! It started with a few phone call's from UCSF telling me that study had ended and that official results would be released today (Wed.). Then asking me if I would be willing to do some interviews for the media. I was so excited! I feel like I should be a adovacte for Tyson and Spina Bifida and for all my Spina Bifda mom friends. So of course I said Yes! The last couple of days have been full of interviews and a fun photo shoot. Here is the link to my interview with the NY Times. Click here. The study ended and they have seen some positive results in motor function, cognition with pre-natal surgery. Also children with pre-natal surgery are less likely to need a shunt. I feel so incredible blessed to have been part of this phenomrnal research! I will be forever greatful for UCSF and there incredible staff. It is great to see hope for spina bifida. Here is the prelimnary results. In the New England Journal of Medicine click here
We are The Thomas Family! I am Jessica mom, wife and nurse. Jared is a railroad man. He works for Union Pacifc Railroad Jared and I have been married for 6 years. We have a 5 year old princess Chloe and a 2 year old stud Tyson. Tyson was born with Spina Bifida and Charii I Brain malformation. We had sugergy in utero on him and I on Feburuary 26, 2009. We were part of the MOMS study. To read more about Tyson read his blog by clicking on his name. Also for more information on the MOMS study visit http://www.spinabifidamoms.com/. Enjoy!
Chloe Anna Thomas
She's 5. She is 100% girl. Her favorite Color is pink. she is obsessed with Disney Princesses and claims she is one. She loves to get dressed up and already has a opinion on what she wants to wear. She also loves her baby brother. She keeps us busy and makes us laugh everyday.
Click on the image to visit Tyson's "website
Tyson Jared Thomas
"Our miracle baby". 2 Years old. He was Born at 4lb.s 3 oz with Myelomeningocele Spina Bifida and severe Charii I brain malformation. He is so chill! He has aready brought much joy into our lives. We love him so much! He is such a boy and loves making messes and the outdoors.