Tonight I was catching up on all of my Spina Bifida friends blogs. I feel so grateful to have this amazing network of women. Most of you I have never met but feel like I know. Their is something special that I feel for your families. We all share that special bond. We all joined the club that no one would probably "chose to join". Tonight I am grateful for that "club". This club has humbled me, changed my life for the better and made me a better person. I am struck by all the awesome moms who would do anything for their SB child and go above and beyond to give them the best life possible. I sit here bawling my eyes out thinking of meeting lots of you in June at The Spina Bifida Conference. This really has been a dream for me. It is crazy that two years ago when I found out Ty had SB I felt so alone. Now I have all of you cheering me and other SB families on.
Tonight I was reading one of the SB families blogs that I have personally met and went to my same church at one point(until are ward split) I was struck by thier need to find a house that was more accommodating to their son Tucker who is 12. Please check out there blog and read the last post. If you know anyone that could help let me know or leave them a message. Thanks.
P.S. Does anyone still read this blog.
3 weeks ago