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Saturday, August 4, 2012

Fetal Surgery Buddies

      A few week ago I got to meet up with this cute little Buddy Jacob and his mama Nicole. I met Nicole a few years ago when she was pregnant with Jacob. We were both in the MOMS Study! It was so nice to be able to talk with her.
We met in San Francisco when she was still waiting for  Jacob to be born and we were out there for our 1 year evaluation. We met and I cute little restaurant. I instantly knew we would be friends. Then a year ago we went to the National Spina Bififa Conference in Anaheim. She is such a great person and I love knowing I have mommies that totally get the the worries, triumphs, & fears of spina bifda. Nicole and Jacob came to Utah for a visit with family and I was so excited to meet up with her. I was so excited to be able to see Jacob walking. He is doing so great. Tyson was being a big bully and I felt so bad. he pushed him over a few times. I am not sure what he was thinking. He is usually so nice I remember how fragile those first steps are especially if you wonder if they will come. Boys play so Ruff!!!

I wish they lived closer I think they would be buddies.

Not a day goes by that I don't think of Tyson and our journey.... I don't want him to forget how blessed we are.
Tyson, Lately it's hard to believe how far you have come....
Sometimes I look at you in amazement as I see you playing. That tiny run with those small little legs seems surreal. You have forever changed my life. You taught me to stop and enjoy the simple things in life. To not judge because you don't know what path that person has gone down or what trial they have faced. You taught me to celebrate the small things.
You have such determination. It has brought you so far and will take you far in life. I am amazed that a year ago you weren't walking. At 2 1/2 years old you weren't walking and daddy and I wondered if you would walk. I prayed and I had faith. You worked hard. I hauled you 40 minutes each way a couple of times a week to therapy. It was hard for you and sometimes I pushed you to your max. Tears were shed by mom and you. You had to go to several doctor appointments a week. I wont forget that cute little walker and you using it. It warmed my heart. You were always so good. I had a lot of fear. But some how I knew that you had overcome the odds and you will continue too. Today the word Spina Bifida at times seems non- existence. The cathing and Bowel management has become the "norm" for us. Today I asked you to go get your blanket and catheter and lubricant so I could cath and we could watch a movie. I was amazed when you brought it all down stairs, "wipes, lub, cath, and diaper. You make me smile. I know heavenly father made you extra special. That slight imperfection on your back is nothing because you are "MY PERFECT"

1 comment:

Nicole said...

Such adorable pictures! I love that they're giving each other a high five. I totally had forgotten that they were playing so rough, how funny. It was a cute meet up. Thanks for driving all the way down to see us, you're amazing!